Jacey Bird and Co.

Hey all, after reading gramma's plea to update we are getting on top of it! Well Jon is still busy working. Jon and I are also getting ready to look at houses/anything we can afford!! hehe Yep, getting excited about buying something. As for Miss Jacey, well she is growing like a weed and getting to be quite her own little person. She is smiling alot more and giggling a bit, standing and jumping on anything that will let her. She has also cut her first tooth, nicknamed Hercules! We have also gotten the results back from her MRI. Jacey has low white brain matter, it is thin in some areas and non existent in others. This means that although her brain is telling her to do things, the white matter that is not there won't transport the impulses to her body. This is why she had trouble breathing, why her eyes took a long time to focus and it also affects her emotions. (Hopefully she is still our sweet little lady after everything) Although we are beginning to catch certain feisty glimpses hehe perhaps a bit more of her mom is showing now!! YIKES! Jacey has to see a neurologist, opthamologist, occupational therapist, physiotherapist and also get a hearing test done. Jon and I need to do some genetic counseling or tests...not sure how that works yet. It will be decided if it is genetic or else something that happened pre/post delivery, the neurologist will be able to tell us. So this is alot to think about, but honestly it could be much worse!! Jacey is still a sweet lady, it isn't a debilitating or degenerative thing which were grateful for. So that is all I think, were just waiting for an appt with these doctors and then go from there. Our doctor said luckily we noticed things while she was young and so we will be able to start things early and also we have seen some improvements and changes already so that is promising. He also said that white brain matter eventually starts to reprogram and rewire its pathways so hopefully she will be able to just outgrow it with some work. WHEWPH!! That is alot of info for everyone. Besides this we are doing great and excited to see people this summer. Can't wait for all the weddings and get togethers. Love you all and take care. -Bird Family